First ENT Visit

Early this morning we had our first appointment with the ENT (Ears, Nose, Throat) doctor. We braved rush hour traffic to drive up to Northside’s Scottish Rite Children’s Hospital and were pleasantly surprised. It’s a very nice facility – modern, well equipped, and with a friendly and knowledgeable staff (except they couldn’t tell me where the “Scottish Rite” name came from – ha, I bet they didn’t see THAT question coming!).

ScottishRite

Scottish Rite Children’s Hospital, Atlanta

As we unloaded the car, I joked it felt like Disney World. A stream of cars were entering the parking deck, unloading strollers left and right while families were all marching down a well manicured path to a campus of modern buildings. All that was missing was the “all is well” cheerful music coming from speakers hidden in the bushes.

We had a great visit with the ENT doctor, and then an even better one with our new audiologist. As expected, this was more of a meet and greet and discussion of next steps:

  • On July 2nd, Fiona will have a retest of the Auditory Brainstem Response test I posted about earlier. Different doctors, different equipment – a true second opinion. While we are not expecting a different result, I can’t help shake the irrational hope that maybe, just maybe they made a mistake. We shall see.
  • In parallel, we will be scheduling time to get an MRI done. This will help determine the extent of the damage and what treatable options are available. This will also help discover if Fiona is a viable Cochlear Implant candidate.
  • We will also be conducting lab work (blood samples) to analyze the health of other parts of her system (Kidneys, etc.) that in small cases can also have problems with children with profound hearing loss. Unlikely, but being thorough. As part of this, genetic testing will also be done to help determine risk factors for future children. (Eliza and I do want to have another child at some point, so this is a very important result to us).
  • We will be meeting with an ophthalmologist to also get her vision checked out. So far Fiona’s eyes seem perfectly fine and she’s been tracking movement for a couple weeks now, so hopefully all is well there. The Isham family has pretty bad eye genes though, so there’s always a little worry there.
  • Assuming she fails the retest, Fiona will be fitted for hearing aids that will need to be evaluated for 3-6 months. While we don’t expect them to have any impact, its a part of the procedure that must first be ruled out before CI.

A lot of doctor’s visits to come! Next week we also start meeting with speech therapists to determine next steps there. We’re particularly excited to check out the Auditory Verbal Center for which we’ve heard fantastic things, and is a close connection to our good friend Zoe. I’ll definitely post more on that as we learn.

So no big news today, but the start of a roadmap.

Would love to hear more from our Atlanta friends on any experiences, positive or negative, with these programs and any others you’d recommend. We’re in total fact finding mode right now.

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7 thoughts on “First ENT Visit

  1. Sheri

    Thanks for the updates. Sounds like Fiona is in great hands. I’ll keep her and everyone in my prayers.

  2. Zoe

    So excited that you guys are looking in the Auditory Verbal Center. There are not enough positive adjectives under the sun to describe them.

    1. Eliza

      Thanks guys!

      Zoe, the audiologist at PENTA said that they highly highly highly recommend AVC as well and also couldn’t say enough great things about them! We are gonna try to get in next week. :-). Thank you so much for telling us about them. It was so comforting to know that we have such a great center nearby.

      And such a coincidence that you knew of them and have worked so closely with them. So thank you thank you!! (I like to repeat words today, ha). We love you!!

    2. Mark Isham Post author

      Definitely, thanks for the recommendation Zoe! The Scottish Rite folks had a lot of great things to say about AVC too!

  3. Amanda

    We are very familiar with Scottish Rite as well as that is where Luke had his tubes put in a year ago! Sounds like there are a lot of options for Fiona. Prayers for you guys as you navigate the possibilities!

  4. Pingback: Auditory Verbal Center of Atlanta | Profoundly Strong - Fiona's Journey

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