Fiona has been wearing her new processors the niadas (on both ears) for 10 days now. We haven’t been able to tell if she can localize sound yet but she is starting to say “w”, “v” and “y” babble. Its too soon to tell what exactly she can hear with her left ear. The audiologist will tweak the processor over the next month until Fiona can hear all sounds from the speech banana.
Here are Fiona’s niadas in princess pink.
Even though the niadas are designed for behind the ear, there is an option to wear them on the body. There are 3 different mics that could be used. 2 of the mics are on the processor while 1 is on the headpiece (where the magnet is). We are currently using the headpiece mic since its harder for Fiona to get the other mics near the opening of her ear. The other mics are currently disabled. She would have to wear the processors on her ear if we were to use those mics. She loves pulling her ears and we could see her throwing the processor off immediately.
This past week and a half have been dedicated to figuring out the best way for Fiona to keep these suckers on her head. We ordered 2 long cords (for body worn) and 2 short cords (to wear on her head).
With the long cords the magnets kept falling off and getting caught on furniture. We bought a spibelt and put the Niadas inside her belt but the belt kept slipping down and the magnets would come off.
We tried these two options for body worn:
I got frustrated with body worn since they kept falling off and I didn’t like staring at SO MUCH CORD!! So I wanted to try the shorter cords and make headbands instead. This worked much better and she doesn’t pull it off her head!! Well most of the time 😉
So this is working for Fiona so far! She’s been doing great with them. We are so happy to have both surgeries behind us and to have our house back to normal again. 🙂
This is what normal looks like…